Entries by Ivonne Bressers

Looking back at 2022

One year ago the Usher Syndrome Foundation announced its reaching the milestone of 1 million euro of donations. A huge and almost magical amount of money! Thanks to the many […]

Tears as a source of information?

Stichting Ushersyndroom and Usher Syndrome Ireland finance research into USH1b Can tears provide information that may be important for improving diagnostics and monitoring in future treatments of USH1b patients? In […]

Research “Development of exon excision therapy”

This study aims at permanently removing specific exons, which include hereditary mutations when patients are concerned, from the DNA of the photoreceptors in the retina and/or the hair cells of […]

New type of Usher Syndrome discovered: USH IV   

The team of the Hearing & Genes Expert Centre of Radboudumc lately made a discovery: Usher Syndrome includes four different clinical types. The researchers, with Hedwig Velde as principal author, recently […]

Run4Usher Zandvoort breaks all records!

On the 27th of March, the Run4Usher team joined almost 12.000 other runners at the start of the Zandvoort Circuit Run. This beautiful spring day set the scene for one […]

Moon-Rocket Grant

Usher Syndrome Foundation Grant Call: The Moon-Rocket Grant The use of the word ‘Ushers’ for people with Usher syndrome is meant with a wink and refers to the meaning of […]

1 million euro

What has Stichting Ushersyndroom [Dutch Usher syndrome Foundation] done with it? We provide an overview and a glimpse into the future. Mini genes USH2A In the ‘mini genes’ project, the […]

What would you do with one million euros?

By Nico de Milliano, Chairman of the Advisory Board of Stichting Ushersyndroom [Dutch Usher syndrome Foundation] Stichting Ushersyndroom will soon reach a wonderful milestone: the first million will be brought […]

New research: testing gene therapy

With extra large vectors on mini retinas  Stichting Ushersyndroom [ Dutch Usher Syndrome Foundation] is funding the majority of the new research “Genetic drugs preventing blindness due to loss of […]