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FACEBOOK GROUPS

There are several Facebook groups in which people suffering from Usher Syndrome and/or parents are active. In these groups they exchange experiences and ask each other questions. You have to be on Facebook to be able to become a member of one of these groups.

USHERS IN CONTACT

Ushers in Contact

  • for people suffering from Usher, (types 1, 2 and 3), partners, parents and other people involved
  • owner: Merianne van Oord
  • private group, apply through personal message

Y-USHERS

Y-Ushers

  • for young people suffering from Usher between 14 and 24 years old
  • owner: Caro Anna
  • private group, apply through personal message, telling us who you are and how old you are

PARENTS OF A CHILD SUFFERING FROM USHER SYNDROME

Parents of a child suffering from Usher Syndrome
– Private and secret group (not to be found)
– Owners are Esther van Popta and Elvira Belt
– Apply through a personal message

GROEPEN VOOR MENSEN MET DOOFBLINDHEID

Er zijn ook een aantal (besloten) facebook-groepen die specifiek bedoeld zijn voor mensen met doofblindheid om elkaar digitaal te ontmoeten, informatie uit te wisselen en activiteiten organiseren.

  • Doofblinden Wereld
  • Doofblinden Meetings
  • Doofblinden Moeders
  • Doofblinden Agenda
  • Nederlandse Doofblinden Connexion (DBCX)
  • OOR & OOG Oogvereniging
  • Doof, slechthorend, doofblind & gebarentaal