So far, one Usher gene is known to cause Usher Syndrome type 3, being USH3A. This type, which is very rare in the Netherlands, is more progressive, so here the loss of hearing as well as the loss of eyesight can go very fast.
Presently, Stichting Ushersyndroom is having talks with a research institute in the USA to see if we can help speeding up the research into USH 3 from the Netherlands. You can read the current status of the study into USH 3 on the knowledge portal
In July 2021, the Usher Syndrome Foundation awarded a grant to the Usher III Initiative to support a patient database. This worldwide Usher III database is in preparation for future trials.