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Fotoboek: Beyond the Muted Darkness

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  • Grote uitdagingen in onderzoek naar Usher

    De droom van mensen met Ushersyndroom is dat onderzoekers op tijd een behandeling vinden om het doof én blind worden te stoppen. Ushersyndroom is niet op te lossen met 1 onderzoek of doorbraak.


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CRUSH study can start!

‘CRUSH USH’ The Central Committee on Research Involving Human Subjects (CCMO) has given the Usher Syndrome expertise centre in Radboud UMC permission to actually start the CRUSH study. The CCMO assesses whether medical scientific research complies with the legal stipulations. With this the CCMO guarantees the protection of participants of the study.
The Usher Syndrome Foundation announced that it will finance this five-year study with over €257,000,= already before last summer. This financing of the study was also made possible by the donations of benefactors and co-financing from the Dutch Dr. Vaillantfonds and the Oogfonds.See the press release ‘Patient and physician jointly take the first step towards treatment of deafblindness’
Study of the natural development for future trialsResearch into the natural development of Usher Syndrome is essential in the phase of therapeutic scientific developments. Many and detailed eyesight and hearing measurements are to be recorded in order to be able to …

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