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Fotoboek: Beyond the Muted Darkness

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  • Grote uitdagingen in onderzoek naar Usher

    De droom van mensen met Ushersyndroom is dat onderzoekers op tijd een behandeling vinden om het doof én blind worden te stoppen. Ushersyndroom is niet op te lossen met 1 onderzoek of doorbraak.


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Innovations, (medical) aids and therapies for balance, ear and eye

Also researches and studies are conducted in the world that do not specifically offer a solution for people suffering from Usher Syndrome, but that can be of significance in the future. Solutions, therapies and medical aids for other disorders can in a later stage be applied to people suffering from specific types of Usher Syndrome as well. 


‘Balance belt’ for patients with loss of balance
The BalanceBelt has been developed for people with failing organs of balance and is meant for maintaining balance. Our brain combines information coming from various systems in order to reach equilibrium/balance. Apart from information coming from the organs of balance in both ears, this also includes information from the eyes and from the rest of the body (such as the muscles and, more specifically, the muscle spindles). The BalanceBelt strengthens the information coming from …

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