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© Stichting Ushersyndroom

Fotoboek: Beyond the Muted Darkness

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  • Grote uitdagingen in onderzoek naar Usher

    De droom van mensen met Ushersyndroom is dat onderzoekers op tijd een behandeling vinden om het doof én blind worden te stoppen. Ushersyndroom is niet op te lossen met 1 onderzoek of doorbraak.


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Documentary ‘A Sense of Black’

The story of George Kabel is the story of victory and defeat. It takes you into the world of the blind artist George Kabel (1955) from Eindhoven. The documentary is about giving new meaning to your life. At first George loses his sight and then he’s turning completely deaf. We see George at work in his atelier, showing his work at the Van Abbemuseum to visitors and as main guest during the workshop ‘Feel and See’ in Rotterdam. George is an artist and one of the 800 Dutch people who suffer with Usher syndrome. He’s not only blind, but will also turn deaf. Last year George exhibited his first conceptual work at the Van Abbemuseum in Eindhoven.
‘A Sense of Black’ is made in collaboration with ‘Stichting Lislokaal Rotterdam’ and ‘Mikxs’, creative solutions for people with an auditory or visual limitation.
The Premiere of A Sense of Black on 1 december …

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