• Grote uitdagingen in onderzoek naar Usher

    De droom van mensen met Ushersyndroom is dat onderzoekers op tijd een behandeling vinden om het doof én blind worden te stoppen. Ushersyndroom is niet op te lossen met 1 onderzoek of doorbraak.



FEITEN & CIJFERS



Start zelf een actie!


Usher Awareness Blog Month

‘Usher and the first time that’.
.
Are you going to take part (again)?
We will daily publish a blog again in the month of September. This year the title will be ‘Usher Syndrome and the first time that’.
The first time that you walked with the red and white cane. Or the first time that your child with Usher Syndrome went on a journey (around the world). The first time that you had to tell you are suffering from User Syndrome. The first time that you received a chochlear implant or that you wore hearing aids. Your first trip with your guide-dog. The first time that your partner went out alone in the dark.
These are only a few examples of stories you can write about the first time, that one exciting moment or that difficult first step that you or your child/partner with Usher Syndrome had to take.
Write your …

Reacties