TAKE ACTION
Just like our ambassador Machteld Cossee, come into action for Stichting Ushersyndroom! As a lifestyle coach at AllemaalVitaal [all vital] and a fervent runner, Machteld is like no other aware of the importance of good health.
COLLECTED SO FAR
Stichting Ushersyndroom spend the raised funds on scientific research into a treatment for Usher Syndrome and for a better quality of life. Do you want to know which projects we already financed?
ABOUT STICHTING USHERSYNDROOM
Stichting Ushersyndroom [Usher Syndrome Foundation] is a network organization. We are all people living with Usher Syndrome, supported by the people around us. We fight for a treatment and for a better quality of our lives.
OUR DREAM
IF YOU BECOME BOTH DEAF AND BLIND…..
WHAT IS LEFT TO DO?
As ambassador of Stichting Ushersyndroom Joyce de Ruiter, who suffers from Usher Syndrome herself, regularly brings the foundation to the attention of the media and gives lectures as a professional speaker and inspirer. With her story she inspires organisations to be resilient and flexible in times of change. In this way she holds up a mirror to the faces of hundreds of professionals, managers, entrepreneurs: fall or go on?
ENTREPRENEURSHIP WITH IMPACT
As a company you can mean a lot to us with little effort. Think of the things given below.
- Partnership
- Sponsoring
- Participate in our events
- Christmas campaign
USHIE, OUR MASCOT
Ushie, our mascot with black sunglasses and headset, is hot! USHIE is the symbol of all people who cannot hear and see well because of Usher Syndrome. USHIE is gender-neutral, cool and very lively!
LATEST NEWS
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Stichting Ushersyndroom launches the ‘Usher Crusher Grant’
We invite international scientists to seize this unique opportunity and submit their most innovative research proposals. On October 8th, Stichting Ushersyndroom [Dutch Usher syndrome Foundation] officially opens its second international […]