OUR MISSION
Usher syndrome is a severe condition that profoundly impacts the lives of those affected and their social environment. From the depths of our hearts, we want this condition to no longer exist.
That’s why we have formulated our mission: “By 2030, the Netherlands will be aware of Usher syndrome, and its diagnosis, treatment and care will have become standard.”
This is the new and challenging mission for our Stichting Ushersyndroom and everyone involved. We strive for proper guidance and treatment of people with Usher syndrome and their close circle, which requires raising awareness.
In the coming years, we have a long road ahead, so we have also set interim goals for 2025 and 2027. In our strategic plan, we have outlined 5 key themes with action points:
- Research
- Fundraising
- Communication
- Internationalization
- Organization
We invite you to read our Strategic Plan and help us achieve our goal.
OUR VISION
Stichting Ushersyndroom believes in the power of a network organization.
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- Partnership: establishing meaningful relationships based on mutual trust
- Flexibility and responsiveness to change
- Independent work with room for individual initiatives
NON-PROFIT STATUS
Stichting Ushersyndroom does not aim to generate profit. The foundation relies entirely on volunteers. All proceeds from sponsorships, bequests, and donations go directly towards achieving the foundation’s objectives.
ANBI STATUS
Stichting Ushersyndroom holds ANBI status, making your donation tax-deductible from income tax. This applies only to donors who are tax liable in the Netherlands.
CBF ACCREDITED
The foundation is recognized as a Certified Charity by the Central Bureau for Fundraising (CBF), meaning we meet strict quality standards.
CONTACT
Raapopseweg 128
6824 DV Arnhem
Bankgegevens:
NL 85 RABO 0362.3905.25
BIC: RABO NL2U
t.n.v. Stichting Ushersyndroom
KvK: 55 61 3004
RSIN 85 17 86 571