OUR ORGANIZATION
“People are what make Stichting Ushersyndroom”Â
The ambassadors, board members, and members of the Advisory Board and Scientific Advisory Board all have a connection to Usher syndrome—either because they live with Usher syndrome themselves or because they are a partner, child, parent, or friend of someone affected. Each person has their own story. This is what makes our foundation unique and distinguishes us from other charities.
COLLABORATION WITH UITZICHT
Since July 2020, Stichting Ushersyndroom has been part of Uitzicht. Uitzicht is an administrative collaboration of several funds in the Netherlands that provide grants for scientific research in the field of ophthalmology.
FRIENDS OF OUR FOUNDATION
The many ‘Friends of Stichting Ushersyndroom ‘ organize national and regional creative actions or voluntarily offer their knowledge and services. The proceeds from the ‘Friends of Usher’ form the foundation’s largest source of income. They are the driving force behind our efforts!
We are incredibly proud of our ambassadors, Machteld Cossee and Joyce de Ruiter. You’ve probably seen them on TV or heard them on the radio. Both Machteld and Joyce have Usher syndrome. Together, they increase the visibility of our foundation and raise awareness about Usher syndrome. It would be wonderful if a well-known Dutch celebrity could help them in this mission!
WILL YOU HELP US?
Stichting Ushersyndroom relies entirely on volunteers, and we greatly appreciate your support. Would you like to contribute and help us in our fight for a better quality of life? Feel free to contact us via email.
