‘CRUSH USH’ The Central Committee on Research Involving Human Subjects (CCMO) has given the Usher Syndrome expertise centre in Radboud UMC permission to actually start the CRUSH study. The CCMO assesses whether medical scientific research complies with the legal stipulations. With this the CCMO guarantees the protection of participants of
The RUSH2a and the CRUSH studies By now, both the RUSH2a and the CRUSH studies have been started in the Usher Syndrome Expertise Centre in Radboud UMC in Nijmegen, the Netherlands. What are the differences and the similarities? We will explain below. CRUSH has been aligned to RUSH2aAlso thanks to
USHIE, our mascot with black sunglasses and headset, is hot! USHIE is the symbol of all people who cannot hear and see well because of Usher Syndrome. The mascot was launched while developing the infographics for a campaign held one year ago. Now we see USHIE more and more often.
The story of George Kabel is the story of victory and defeat. It takes you into the world of the blind artist George Kabel (1955) from Eindhoven. The documentary is about giving new meaning to your life. At first George loses his sight and then he’s turning completely deaf. We
During the 7 Hills Run in Nijmegen, the Netherlands, Joshua Cheptegei broke a world record, but the fifth edition of Run4Usher was a record-breaker too! Last weekend, 110 runners appeared at the start of the 7 Hills Run. People suffering from Usher Syndrome and their families and friends took up
Source: EFF During the Eindhovense Film Festival (EFF), the short film ‘A sense of black’ will be premiered in the Van Abbemuseum on 1 December. The story of George Kabel is the story of victory and defeat. It takes you into the world of the blind artist George Kabel (1955)
Source: NPO 2Doc.nl Text: Wieneke van Koppen Photo: Lin Woldendorp Date: 3 October 2018 In 2014 ‘The small world of Machteld Cossee’ made by director Hetty Nietsch had its première at the Dutch Film Festival. Six months later it was broadcast on television in 2Doc. Machteld Cossee is an enterprising
Stichting Ushersyndroom finances CRUSH study The expertise centre for Usher Syndrome in Radboudumc in Nijmegen (the Netherlands) will start a natural development study into Usher Syndrome. This is a very important step in the research into a treatment of Usher Syndrome, because this study may substantially shorten the running time