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‘CRUSH USH’ The Central Committee on Research Involving Human Subjects (CCMO) has given the Usher Syndrome expertise centre in Radboud UMC permission to actually start the CRUSH study. The CCMO assesses whether medical scientific research complies with the legal stipulations. With this the CCMO guarantees the protection of participants of

The RUSH2a and the CRUSH studies By now, both the RUSH2a and the CRUSH studies have been started in the Usher Syndrome Expertise Centre in Radboud UMC in Nijmegen, the Netherlands. What are the differences and the similarities? We will explain below. CRUSH has been aligned to RUSH2aAlso thanks to

INTERNATIONAL SYMPOSIUM ON USHER SYNDROME USH2018: JULY 19-21, 2018 IN MAINZ, GERMANY A broad alliance of institutions presents the 4th International Scientific Symposium on Usher Syndrome and the International Patient Symposium (10th Annual USH Connections Conference). The International Symposium on Usher Syndrome will convene at the Atrium Hotel Conference Centre

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Last week we received the great news about the upcoming first trials in the study into Usher Syndrome. Foundation Fighting Blindness will invest $7,5 million in the pharmaceutical company ProQR for setting up the first clinical trial for patients with retina degeneration caused by mutations in USH2A exon 13. This