If I had $ 45 billion, I would consider giving at least 1 million to the important work of Ushersyndroom.nl for scientific research. It is a nightmare to lose both your sight and hearing. This is a reality for 400,000 people worldwide because of Usher Syndrome, a rare genetic disease. Doctors are diagnosing sooner than before. Parents and children have to learn to deal with it, knowing that participation in our society of fast communication, mobility and access to the internet will be a real challenge.
Doctors are now developing a gene therapy to stop this rare disease. One million euro can make this happen!
Mark Zuckerberg, are you the key for us to reach out for sight and sound?
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