INFORMATION FOR PATIENTS

THIS PAGE IS STILL UNDER CONSTRUCTION

This page will in the future contain information for patients and their parents and partners. How do I deal with the diagnosis for Usher Syndrome? What does this mean for the future? Where can I go for proper help? What aids are there? How can I help my child or partner suffering from Usher Syndrome?

We also want to translate and publish all scientific articles and news messages about Usher Syndrome on this page, making sure that everyone can be kept up-to-date with all medical-scientific developments elsewhere in the world.

Do you have any questions about our foundation or do you think you can make a contribution to this page, please contact us. Send an e-mail to info@ushersyndroom.nl
Do you have any questions concerning medical content, please contact ushersyndroom@radboudumc.nl

For contact with fellow sufferers, you can send an e-mail to ushersyndroom@oogvereniging.nl

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