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THE PSYCHO-SOCIAL CONSEQUENCY OF USHER SYNDROME

Prof. Dr. Möller conducts psycho-social research into people suffering from Usher Syndrome. In his homeland Sweden, he has met over 700 families living with Usher Syndrome in the past years. During a symposium held in the Netherlands in 2017, he held a lecture about the psycho-social consequences of Usher Syndrome.

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THE CONSEQUENCES OF USHER SYNDROME FOR THE QUALITY OF LIFE

Marina Arcous e.a. did a scoping review on the consequences of progressive deterioration of the senses for the quality of the lives of people suffering from Usher Syndrome.

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LIVING LOSS

“If you have to live with an impairment, this will not be over at a certain moment. You have to be able to organise your life with those limitations every day again.” Manu Keirse

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LIFE STRATEGIES FOR PEOPLE SUFFERING FROM USH 2A

Claes Möller & Moa Wahlqvist and their team did a study into the strategies that people suffering from Usher Syndrome type 2A apply in order to be able to cope with Usher and its consequences.

There are no studies into the life strategies of people suffering from Usher Syndrome. In literature people suffering from deafblindness are often described as being vulnerable. They would have a low quality of life and be in less good health because of psycho-social consequences of Usher Syndrome.

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