The objective of the Usher Syndrome Foundation is to promote the interests of all people suffering from Usher Syndrome and their social environments. By working together in a network organisation, we make Usher Syndrome more widely known and we acquire the means to improve the quality of the lives of people suffering from Usher Syndrome.
As from March 2016, we are in transition from a small foundation to a professional network organisation. Not all vacancies have been filled yet. Do you also want to make a contribution to our network organisation, please contact firstname.lastname@example.org (This page will be further adjusted in the coming weeks)
The people mentioned below have indicated that they want to make a contribution to the new organisation.
Within the Usher Syndrome Foundation the Campaign Team is working on familiarity and raising funds and donations. The Usher Syndrome Foundation is supported by Friends of Usher. The Friends of Usher assist the committee and the campaign team with advice, scientific knowledge, networking and familiarity. In order to safeguard the promotion of interests and the contact between fellow sufferers, the Foundation wants to closely cooperate with the Usher Syndrome Contact Group within the Oogvereniging.
What we believe in
We opt for a network organisation because we want to be agile and transparent, dynamic, contemporary, contrary and distinguishing! We think that a network organisation is a very suitable form, because people suffering from Usher Syndrome can actively participate themselves in project groups cooperating with other volunteers and professionals. Besides, we think that by working together and joining our forces we can achieve more for people suffering from Usher Syndrome. We look for cooperation with people and companies that come together in fighting visual and/or auditive impairments and rare disorders. Together we are committed to improving the quality of the lives of those involved.