RESEARCH PROJECTS FOR USH 3

So far, one Usher gene is known to cause Usher Syndrome type 3, being USH3A. This type, which is very rare in the Netherlands, is more progressive, so here the loss of hearing as well as the loss of eyesight can go very fast.
Presently, Stichting Ushersyndroom is having talks with a research institute in the USA to see if we can help speeding up the research into USH 3 from the Netherlands. You can read the current status of the study into USH 3 on the knowledge portal