‘Usher and the first time that’.
Are you going to take part (again)?
We will daily publish a blog again in the month of September. This year the title will be ‘Usher Syndrome and the first time that’.
The first time that you walked with the red and white cane. Or the first time that your child with Usher Syndrome went on a journey (around the world). The first time that you had to tell you are suffering from User Syndrome. The first time that you received a chochlear implant or that you wore hearing aids. Your first trip with your guide-dog. The first time that your partner went out alone in the dark.
These are only a few examples of stories you can write about the first time, that one exciting moment or that difficult first step that you or your child/partner with Usher Syndrome had to take.
Write your story titled ‘Usher and the first time that’ in 300 to 400 words.
Add a nice picture and submit your blog and the picture before 1 September to firstname.lastname@example.org. You can also write anonymously or under a fictitious name.
If you already took part in the blog challenge last year, of course you are very welcome to join in again this year!
September Blog Month
In order to globally focus attention on Usher Syndrome, the ‘Usher Awareness Day’ was established. This day is held during the autumn equinox, every third Saturday of September. This year, the autumn equinox will be on 16 September. Last year, The Usher Syndrome Foundation daily published a blog about the autumn equinox during the entire month. This blog series was very successful and it attracted many readers. This year, we will start a second blog series and we hope for a lot of wonderful and moving stories from people suffering from Usher Syndrome and from parents, partners and friends of ‘Ushers’.
An equinox (Latin: for cosmic time) is the moment on which the sun is perpendicular to the equator. At the time of the equinox the length of the day and the night is perfectly in balance everywhere on earth and the sun rises exactly in the east.
An equinox happens twice a year, being on or around 20 March (spring equinox) and on or around 21 September (autumn equinox). Following the autumn equinox there is less light every day: the days get shorter and the night get longer.
Usher Awareness Day
The autumn equinox is the metaphor for the Usher Syndrome, because this experience of seeing increasingly less light is for people suffering from Usher Syndrome not only a seasonal cycle but an irreversible process as well. The light-sensitive eye cells that have died will never come back.
Receiving the diagnosis of Usher Syndrome is a frightening experience.
Therefore we want to make Usher Syndrome known all over the word, making sure that the impact of becoming both deaf and blind will be better understood.
Everyone must know that people suffering from Usher Syndrome are remarkably smart, driven en motivated to keep taking part in society.
Do you want to re-read the blogs of ‘The day that I received the diagnosis of Usher Syndrome’? Visit this page: ‘The day that I was diagnosed for Usher Syndrome’.