Usher and my first photoshoot
My world is small; I don’t have a lot of activities. I don’t reach out to other people and I’m a real wallflower. Luckily I have my family, and through them I have some activities.
Last year I read about the calling for photo models with Usher syndrome to take part in a coffee table book with portraits of 40 Ushers. The revenues of the sale of this book will be donated to Foundation Usher Syndrome. This calling did something to me, something was tickling deep inside me. With this photoshoot I would have the opportunity to show a fragment of my world, to share this with the outer world. I felt I had to react.
For me as a wallflower the step to apply for this shoot was a big challenge for me. I thought what the heck, and I send an email. A few days later I received the news I was linked to photographer Merlin. I was supposed to think about my interpretation of the photoshoot, how would I like to express myself.
At first I saw myself like Snow White in the serie Once Upon A Time. Myself as a tough princess with a beautiful gown. But it seemed too much hassle to me.
Then I thought about the funniest pie shop of Amsterdam as a location of my photoshoot, where I love to enjoy a delicious pie with my family. Except for my youngest son who painted beautiful wall paintings in a bagle store before, so this option could be crossed off also.
In the end I decided to have the photoshoot at home, the place where I feel safe and where I’m together with my family. In the midst of the chaos of our family life, what I can see and hear very little of, I enjoy those small points of light in my life.
And then the moment was there! What was I nervous. We hadn’t prepared ourselves that much. I would have baked a pie and could have decorated our house with Christmas lights. We bought us a little pie in the early morning, borrowed some flowers of our neighbors and spiced up the living room. The photographer came in and made beautiful pictures of me, among my family members, together at the table.
The photoshoot made me something, I can’t barely put it in words. It was a simultaneously a happy and super emotional moment. I shared this special moment with my husband and children I love very much and am super proud of. The photoshoot represents a remembrance, of a moment which went by too fast. A moment where I could get away, just for a moment, from my reality, my loneliness, when the people surrounding me get on with their lives and I’m staying at home. It was my first time I knew how to escape.
Read more about the photo book (in Dutch) ‘Beyond the Muted Darkness’.
#stopUSH and make our dream come true!