What would you do with 45 billion dollars? Reality for Mark Zuckerberg, a great wish for Ushersyndroom.nl. However, a small part of this amount can stop people from slowly becoming both deaf and blind because of Usher Syndrome. We are all only 5 handshakes away from the most influential persons in the world. Therefore Ushersyndroom.nl wrote a letter to Mark Zuckerberg which was massively shared through social media by means of a Thunderclap.
Mark Zuckerberg, founder of Facebook and since a short time father of daughter Max, announced that he will invest 99% of his capital (about 45 billion dollars!) in the ‘Chan Zuckerberg Initiative’. One of the objectives is to invest in medical developments for curing diseases. By writing this letter to Mark Zuckerberg and by massively spreading this through social media, Ushersyndroom.nl hopes to increase the familiarity with Usher Syndrome and to achieve this one virtual handshake. If Mark Zuckerberg were to invest in scientific research, the process of becoming both deaf and blind caused by Usher Syndrome can be stopped at one blow.
Letter to Mark Zuckerberg on line like a thunderclap!
What actually is Thunderclap?
Thunderclap offers the possibility to reach a very large group of people at one blow. It is a crowdfunding action in which people do not donate money but their ‘social media voice’.
After a pre-set goal has been amply exceeded, the message is simultaneously published on the social media time line of all supporters of the Thunderclap. This Online Flashmob ensures a larger range than when everybody were to post this message separately and widespread. You can also become a global Trendic Topic on social media by using the correct hashtag. This gives the campaign of Ushersyndroom.nl an enormous positive boost.
The pre-set goal of 100 supporters was amply exceeded already after only one week. The ‘Letter to Mark Zuckerberg’ was simultaneously published at all social media accounts of the supporters of the Thunderclap on 19 December.
Letter to Mark Zuckerberg
If I had 45 billion dollars, I would donate 1 million dollars or more to Ushersyndroom.nl for scientific research. Slowly becoming both deaf and blind is a nightmare for many, but reality for 400,000 people worldwide. Physicians can diagnose faster than they could before. Parents and children must learn to cope with this, knowing that participation in this society with its fast communication, mobility and Internet will be a great challenge.
Physicians want and can now develop a gene therapy to stop this rare disease. What is 1 million euros compared to so many lives?
Mark Zuckerberg, are you the key for us to reach out for sight and sound?
The ‘Letter to Mark Zuckerberg’ had already reached a lot of people in the build-up to the ‘Thunderclap’. Eventually, the entire action reached over 600,000 people through social media and was shared more than 1000 times on Facebook and Twitter all through the world.